Friday, December 19, 2014

Friend Grief's Top Five List for 2014

The year is almost over and I thought it would be a good time to look back on the posts that generated the most interest this year.

The funny thing about writing is that you don’t always know what resonates with people. Sometimes you write something that you believe is so brilliant it will change the lives of everyone who reads it – and obviously, everyone in the world will read it. That usually doesn’t happen. Sometimes you write something that’s definitely not your best effort, but there’s something about it that hits a nerve.

This list certainly surprised me:

#5 Update on Friend Grief and AIDS The second book in my series has been the most popular by far. It’s also the one that I’ve committed to updating every January (so expect a 2014 edition in the next few weeks) to include current facts and new resources. It’s a subject I’ve been close to for over 30 years now. I donate 25% of the retail price (not profit) of every paperback and ebook to Broadway Cares/Equity Fights AIDS.

#4 How Celebrities Grieve Their Friends 2014 seemed to be an exceptionally bad year for celebrity deaths. For some reason, we expect those in the public eye to grieve differently than we would. They don’t. It’s just that their grief is on display for the world to critique.

#3 The End of the Friend Grief Series? The title certainly got a lot of attention. I’m not at the end of the series, but getting close. The fifth of sixth books comes out in late January. But there’s more to come, and the series has taken a turn that surprised me.

#2 Anger, Condemnation and Philip Seymour Hoffman  Ah, celebrities again. The death of this talented actor brought out not just grief but anger and swift condemnation as well. The reactions were shocking to a lot of people – friends and strangers alike.

#1 Friend Grief: Guilt vs. Regret. This was definitely a surprise. I try very hard to avoid regrets. And 2014 has shown me the power of doing that. I grieve for two friends who died this year – Pierre and Dan – but I don’t have a lot of regrets. That has eliminated the guilt I would’ve felt if I hadn’t taken a chance of looking stupid. I highly recommend a carpe diem approach to life.

So that’s my list. I suspect the 2015 list will surprise me as well. Maybe one of your favorites is here, maybe not.

As always, stay tuned. There are big, big changes (all good) coming soon that I think you’ll find helpful.

One thing won’t change, sadly: we will grieve our friends. And hopefully, we’ll remember them with love and joy, as we’d want them to remember us.

Thursday, December 11, 2014

Friend Grief Without (too much) Guilt

There are different kinds of guilt. There’s the guilt we feel for saying or doing something that hurt someone else. And there’s the guilt we feel for not saying or doing something.

About a month ago, I acted on a whim. It was something I’d thought about doing for a while, but hadn’t done. What possessed me, I have no idea.

During college I lost touch with the guy I took to prom junior year. We did a couple musicals together, and he also came with me to my senior Christmas dance. We had fun together (not to mention my first kiss). Dan was often overshadowed by his popular older brother, a very talented actor and pianist. But I think one of the reasons Dan and I got along so well was that I liked him for himself, not his brother.

I knew he’d gone to work for one of the airlines after college, but otherwise, did not have any direct contact with him for a long time. A couple years ago that changed when we became friends on Facebook. We sent birthday wishes and liked each other’s updates, but that was the extent of it.

In October, I was visiting my mother and realized I’d driven by the business he opened after retiring from the airlines. I remember thinking “I should stop by and say hi.” Then I thought, “No, that’s stupid.”

But on a trip in early November, I decided to risk feeling stupid or even unwelcome. Dan was working in the front of the store, and as soon as I walked through the doorway, he smiled. “I’d recognize you anywhere, Viki.”

He invited me to sit down and we spent some time catching up on what we didn’t know from Facebook. I told him I’d be back in town this week and we talked about maybe getting together outside of his work day.

This past Saturday a very cryptic post on his Facebook page showed up in my notifications. It was from a man he’d worked with, expressing his gratitude for their friendship. In fact it was so cryptic, it took me a few readings to realize it meant that Dan was dead. It took the rest of the weekend for confirmation that indeed, he’d died suddenly.

It wasn’t that I had any great expectations of what getting in touch again would mean. I just assumed in November that he’d still be around in December.

I was wrong.

Honestly, I’ve been pretty weepy all week, though I haven't had time for the cry that I know I need. I will, I promise, probably tonight or tomorrow when things calm down a bit. I’m going to miss his memorial service on Saturday, because, as usual, I’m 300 miles away.

So, yes, I’m grieving right now. But I’m grateful beyond words that I acted on that whim. Even though I had no reason to believe he wouldn’t be his usual charming self, I did worry that I’d make a fool out of myself.

Do I wish I’d seen him sooner, maybe when the idea first popped into my mind? Of course I do. But I did see him and talk and laugh and hug. And as much as I wish there would be more of that, I’m grateful that I don’t feel guilty. Had I not seen him, had I assumed I could stop by sometime in the future, oh, yeah: what I would feel most strongly now would be guilt.

I wish we would’ve had more time together. He was, without a doubt, one of the sweetest, kindest, funniest men I’ve ever known. I don’t think I fully appreciated that at 16, but I sure do now.

There’s probably a Dan or two in your life: a friend you’ve lost touch with, not because you had a fight, but because life took you in different directions.

If you’re reading this, and someone pops into your head who fits that description, please reach out to them. You have my permission to use the holidays as an excuse. Don’t wait until tomorrow.

Because tomorrow might be one day too late.

Thursday, December 4, 2014

"All My Friends Are Dead"

Pierre on "Combat"
Growing up in the 60s, I was, along with my friends, definitely anti-war. I knew guys who served in Vietnam – two who died – but I didn’t agree with the war. 

It seemed odd to many that one of our favorite TV shows was Combat! It ran from 1962-67, and featured a squad of American soldiers in France after the D-Day invasion. We watched the show because we thought the actors were cute. And my favorite was Pierre Jalbert.

Pierre was my “type”: under six feet tall, dark, lean. The French accent didn’t hurt. It was a great, long-distance fantasy…until we met.

The night we met
It’s a long story that I won’t get into, but one night in 1984, I think, my two best friends and I found ourselves partying with Pierre, his wife, and Jack Hogan, who played Kirby on the show. The next day I had the worst hangover of my life, but it was worth it. I only saw him once more, about a year after that. One of my friends kept in close contact, but I didn’t. I’m not sure why.

Pierre’s life was nothing short of amazing: Canadian ski champion, Olympic captain, friend of movie stars, ski instructor, sound editor, actor, writer. He built his house in Beverly Glen and was a talented wood carver. He was obsessed with the life of the Marquis de Lafayette. “He was 19 when he fought in the Revolutionary War!” he’d tell me again and again.

He told me because I visited him a few times in recent years to record the stories of his life. We’d sit in the dining room of his beautiful home, scanning old photos, taping our conversations.

During one of my visits
He was certainly frail those last years, after suffering a stroke. I drove him to some doctor appointments. Though he was frustrated with minor memory lapses, he never lost his sense of humor. Once, when a medical technician assumed I was his wife, he insisted, “No, she’s my girlfriend, not my wife.” I turned bright red, because even at 88, he was still a handsome flirt.

I wrote last week that I learned a lot from him in his last year. I didn’t just learn about Lafayette, or why he was brought in to help with The Godfather (Pierre’s responsible for the iconic baptism/mob hit sequence at the end of the movie).

I learned that he gave full credit to his friends for everything that happened to him in his life. A new one would appear at a crucial moment, offering him an opportunity that would change his life: the actress who invited him to Paris, the businessman who sponsored his immigration to the US. “I wouldn’t be where I am today without my friends.”

I learned that he missed them terribly. “All my friends are dead,” he insisted, when we first sat down to record his stories. “Not all of us,” I countered. His stories about his friends were told without a trace of envy or disapproval. He loved them for who they were, and though he didn’t always understand or condone their behavior, he loved them nonetheless.

I learned that with every setback – rheumatic fever, the shattered leg that left him in constant pain for over 60 years, deportation when he failed to secure a work visa – he bounced back. He had a resilience that was remarkable. “Weren’t you depressed when you couldn’t ski in the Olympics?” “Sure,” he agreed. “For a week.” Then, Norma Shearer invited him to Paris, and he moved on to the next adventure.

I learned that it’s possible to live your life without regrets. When he insisted he had no regrets about his life, I was skeptical. I tried to bait him, frankly. Maybe it was Buddhism that gave him that peace. But just as he saw his friends impact his life, he saw each twist and turn as something ultimately better. Everything happened for a reason.

I feel like I learned a lot from Pierre. I still have my notes and my tapes. Next year I’ll transcribe them and put them into a coherent tale about one of the most remarkable men I’ve ever known.

I can hear his voice sometimes. If I close my eyes I can feel his hand in mine as we walked through the parking lot to lunch. When my car windshield is dirty, I think of him insisting I pull into the gas station in Santa Monica so he could clean it.

Finally, Pierre, I’m writing about you. Don’t give me that typically French shrug, as if you don’t care. I know better. So wherever you are, pour yourself a scotch on the rocks and settle back.


Monday, December 1, 2014

World AIDS Day 2014

Today, December 1, is the 27th annual observance of World AIDS Day.

Since that first year, when I dropped a few pounds in the collection can at the curtain call of a play in London, I’ve marked the anniversary.

The second year I coordinated a fundraising event. Some years I went to a special Mass or memorial service. Other years I simply made note of it and went about my business.

This year I’ll be part of a reading and panel discussion at Women & Children First bookstore in Chicago about the generation gap in the AIDS community. This reflection on Huffington Post last week will give you an idea of what that means in terms of fighting the epidemic.

The theme for World AIDS Day this year is “Focus, Partner, Achieve”.

This year the epidemic looks like this:

            1.2 million people in the US are living with HIV; 14% don’t know they’re infected.

            The annual number of new infections has held steady for 10 years: 50,000/year.

            13,000 people with AIDS in the US will die this year.

The African-American community – particularly men who have sex with men – is disproportionately affected.

So, how do we follow the theme for this year?

Focus:              Target education and prevention efforts to the communities most at risk: African-Americans and young people 13-24

Partner:            Work with faith communities, schools, government agencies and nonprofit organizations to reach those communities.

Achieve:          Make an AIDS-free generation our goal.

What does all that mean?

It means that 30+ years into the epidemic, there’s a hell of a lot of work to do, in the US and around the world.

It means we have to reach out to make sure that every conversation- whether it’s about education, affordable housing, access to healthcare, affordable medications, anti-discrimination laws, aging – includes a recognition of how those issues impact people living with HIV, and those at risk of infection.

There is no cure. There is no vaccine. But unlike the early days, we have powerful tools: scientific knowledge, antiretroviral drugs, PReP (Truvada, which can effectively protect against infection).

That’s where reaching out to partner with others is important. The drugs won’t help you if you don’t know about them. They won’t help if you can’t afford them. It’s hard to keep to a regimen if you’re living in a homeless shelter. Unpredictable health won’t help you keep a job.

We’ve come a long way in 30+ years, but there is such a long way to go.

And I for one would like to see a day when, on December 1, people have to be reminded of what the world was like before AIDS was eradicated.

And the only way we do that is by working together, every day.

For more information on HIV, AIDS and what you can do to help:

Tuesday, November 25, 2014

Thankful for Our Friends – Here and Gone

The holidays are a difficult time for those who grieve.

Even under normal circumstances, we feel obligated to be happy, to enjoy ourselves, to crave the company of others. But for those who have suffered the loss of a friend, it’s tough to get in the holiday spirit.

We often hear that this time of year is for family. I think we all agree that we like to reconnect with friends, as well. I look forward to seeing friends from high school – often the only time all year we can sit together in one place and catch up on our lives. Next year we’ll have a reunion, but since we lost a classmate on 9/11, we don’t wait around for the next formal gathering. We no longer say “we should get together more often”. We do it.

A couple of my friends have faced serious health issues this year. Even though none of the situations turned out to be life-threatening, each one reminded me that none of us will live forever.

I’ve found myself being more assertive about making plans to get together with friends I haven’t seen in a long time – years, even decades. Those friendships have felt more intense this year. Maybe it’s our age. But there’s certainly a need to connect.

A friend of mine died in January. He was 89 and frail, so it wasn’t unexpected. I assumed I’d blog about him soon after. But I couldn’t. I tried, but I couldn’t. So now it’s ten months later – where did the year go? – and I still haven’t written about him.

It’s not that I forgot. Like my friend Delle, there are times I feel his presence, hear his voice. Things pop up that remind me of him. He doesn’t feel all that far away.

So next week, after I’m done with my World AIDS Day event in Chicago, I’m going to sit down and write about him. He taught me a lot during his last year that I’m still processing, so maybe this will help.

As you prepare to travel over-the-river-and-through-the-woods to celebrate Thanksgiving with your families, I hope you carve out (sorry, couldn’t resist that) some time for your friends as well – the ones who are here and the ones who are gone.

Give thanks for the friends in your life who made you who you are today.

If they’re still here, tell them how much they mean to you.

And if they’re not, tell them, too.

Monday, November 10, 2014

Friend Grief on Veterans Day

For Veterans Day, I'm reposting the announcement of my latest book, Friend Grief and the Military: Band of Friends. It recently earned an honorable mention in the Chicago Writers Association 2014 Book of the Year Awards. But what means even more to me are the reactions of veterans who have read it: "You get it."

Grief is hard. Grief for our friends is often dismissed as unimportant, at least when compared to losing a family member. But friendships forged in the military are different, very different. You’re friends, but more, because your lives depend on it.

In my book, you’ll meet men and women on the front lines who watched their friends die, and carry the trauma of that moment with them for decades. You’ll meet noncombatants – doctors, nurses, chaplains, war correspondents and even a little drummer boy from the Civil War – who struggle with grief and guilt and carrying on.

You’ll learn about moral injury, and how that may be a much bigger story than PTSD. And you’ll learn why the oft-recited statistic of 22 veterans a day committing suicide is shockingly inaccurate.

And because grief also changes people for the better, you’ll be introduced to individuals and organizations who are working with veterans to resolve their guilt, work through their grief and honor their fallen friends.

I struggled with the title. Everything I came up with was too vague or too wordy. So I explain in this excerpt how I made my decision:

The popular mini-series Band of Brothers took its title from what has become known as the St. Crispan’s Day speech in Shakespeare’s Henry V:

                        This story shall the good man teach his son;

                        And Crispin Crispian shall ne’er go by,

                        From this day to the ending of the world,

                        But we in it shall be remembered –

We few, we happy few, we band of brothers;

For he to-day that sheds his blood with me

Shall be my brother…

Since Shakespeare’s time we’ve often heard soldiers, sailors and Marines refer to their battle buddies as “brothers”. Even though it’s somewhat problematic, given the increasing role of women on the front lines, the designation has stuck.

In writings as far back as the ancient Greeks, the relationship between soldiers has been described as comparable to family. A family is a group of people related by blood that functions together with common goals and dependency. “Blood is thicker than water,” right?

In the military, nothing can be accomplished without the trust and dependability of those in the unit. That cohesiveness is the difference between success and failure, life and death, every hour of every day. The bond is stronger than a normal friendship because your lives depend on it. So, when asked why they refer to their friends as brothers, you are likely to get an answer along the lines of “because they mean as much to me as family.” Referring to other soldiers as family members is, from their perspective, the highest compliment.

A similar phenomenon existed in the AIDS community in the 80s and 90s. People with HIV/AIDS – gay, straight, young, old, male, female – were often abandoned by their families. Their friends became their family of choice – of necessity, really – because their lives depended on them.

Conventional wisdom still holds that the bond between family members is normally stronger than that between friends. But I wonder why, considering this quote that’s quite a bit older than Shakespeare’s:

“Greater love has no one than this: to lay down one's life for one's friends.” (John 15:13)

That’s why this book is not titled Band of Brothers or Band of Brothers and Sisters.

This book is titled Band of Friends.

Friend Grief in the Military: Band of Friends is now available for Kindle, Nook and Kobo; paperback version available from Amazon, Barnes & Noble and IndieBound.

Friday, November 7, 2014

Keeping in Touch with a Friend Who Died

Delle Chatman
I was helping my mother sort through old papers yesterday morning: bank statements, tax returns, paid bills. The shredder simply stopped twice, overheated and tired. On one of its breaks, I picked up two envelopes addressed to her in my handwriting. Puzzled, I opened them both to find copies of emails I had shared with my parents: emails from my friend, Delle Chatman.

When I realized what they were, I had to smile. You see, today is eight years since Delle died. I’ve felt her presence on occasion – so strongly at times I’ve heard her voice and once even felt her arms around me. My first thought upon seeing the emails was, “Gee, you’ve been quiet for a while. Where have you been?”

Those of you who have read my books or this blog for a while will recognize the name. Delle is the reason I’m a writer. I told her when she was in remission from ovarian cancer that I wanted to write a book about people who are grieving the death of a friend. She was enthusiastic about the idea, and made me promise to do it. It took a while, but I did.

The first email was dated New Year’s Eve, 2004. I won’t go into detail about it. It was deeply personal, reflecting on both her cancer battle and that of my father. She closed it saying she wanted us to get together the following week for coffee because she wanted some guidance from me on a new project.

I’m struggling to remember that project. It might be one of several; she always had something percolating. But I was a little surprised to see in print that she had asked for my help. I know we’d ask each other for input on various things, whether related to our daughters or our work. But still, it gave me a little comfort to see confirmation of her respect for my opinion.

The second email was dated Feb. 18, 2005, exactly four months before my father’s death. Delle, herself, was just out of the hospital after another recurrence of what she called “the beast”. While the first email was only for me, this one was sent to “Delle’s Elves”, those of us who had rallied around her since her initial diagnosis in 2002. It was one of her occasional emails bringing us up to date on her condition, outlook and needs.

As usual, she cut to the chase and related the bad news first. But most of the three page email was devoted to good news, exciting projects and her love of her daughter, The Remarkable Ramona. And she ended it as only Delle could: giving hope to those who sought only to hold her up:

I just wanted to let you all know there’s fresh cause to give thanks and to praise God. I wanted to share the depths of it all with you because for a few years now for some of you (thank Heaven for new friends!) you’ve walked with me in spirit, truth and love. I’m grateful for your company and your friendship.

This is what matters.

This is all that matters.

As you pray for me and Ramona, know that we are praying for each of you.

God has given us to each other.

And I, for one, am very, very glad about that.



Like I said, I’ve “heard” from her many times since her death. Whether it was a candle flame sparking a fire on the side altar at our church during a Mass being said for her, or the sun blinding me through a stained glass window during my daughter’s confirmation (Delle was supposed to be her sponsor), each occurrence has been marked by a certain…theatricality. That’s how I know it’s her. Nothing subtle will do.

“God has given us to each other.”

I know all of Delle’s friends feel that way.

And we always will.

Monday, November 3, 2014

Friend Grief and the Holidays

Now that we’re past Halloween, the holidays are upon us. You may not be ready, but they’re coming anyway. For the first time in a long time, I will have my Christmas shopping done before Thanksgiving. But that was a self-defense decision, as I have an unusual amount of holiday commitments this year.

This may be a year in which you’ve lost a friend – or more than one. We tend to think of grieving during the holidays in the context of losing a family member. That’s often the case. It’s been forty years since my uncle died in a car accident less than two weeks before Christmas. There was not much to celebrate that year. Even when a death occurs much earlier in the year, the holidays become one of those ‘firsts’ we struggle to get through.

But little attention is paid to those who are missing a friend during the holidays. That grief is every bit as important. It’s just too often dismissed.

That’s why this Wednesday, Nov. 5, I’ll be the guest on a Google+ hangout on that very topic.

CHANGES, hosted by Sally Ember, will be live from 10-11am EST. You can be a part of it or check it out afterwards, if the time conflicts with your schedule.

Here are the links:

Wednesday, November 5 - , LIVE:

            Or catch our conversation any time on YouTube:

I hope to see you there with lots of questions for us! If you can’t make it, but would like to have your question answered, email me at, and I’ll do my best to include it in our discussion.

Wednesday, October 29, 2014

The End of the Friend Grief Series?

Don’t get excited. It’s not happening tomorrow.

When I made the decision to serialize what was originally one book I knew it would eventually end. I believed there would be six books in the series. That’s still my assumption. What’s changed is the subject of the sixth one.

By now you know that I’ve published four books

            Friend Grief and Anger: When Your Friend Dies and No One Gives A Damn

            Friend Grief and AIDS: Thirty Years of Burying Our Friends

            Friend Grief and 9/11: The Forgotten Mourners

            Friend Grief and the Military: Band of Friends

The fifth book, Friend Grief in the Workplace: More Than an Empty Cubicle, comes out in January (details will be announced in mid-December).

I thought the sixth book would be a wrap-up. It would be just about people who made major life changes after their friend(s) died. But those stories can be found in the first five books. They’re not just stories about someone dying and how their friend coped. They’re about those friends and how they lived their lives afterwards. That sixth book, in effect, is spread among the first five. But instead of ending the series after five books, I realized I already had the beginnings of a sixth book.

In 2012, before I decided to serialize my original book idea, I wrote a guest post for The Good Men Project. It was my mea culpa for assuming that it would be near impossible to get men to talk about grieving their friends. As I said in the article, I’ve never been so wrong. I promised then to write a book on this very topic. And so I shall.

Before you ask why I have not considered writing a book just about women grieving their friends, read the post. Women are much more likely to share their grief – in fact, they’re expected to. Men? Not so much.

After sleeping on the idea for a few nights, I decided today that the sixth book in the series will indeed be about men grieving their friends. I don’t have a title yet; that usually comes while I’m working on the book. But I have some damn powerful interviews to share.

Who knows? There may be a seventh book or even an eighth. I’ve had intriguing suggestions for future titles, so we’ll see.

There you have it, then: the change of subject for the sixth book is my big news for now. Next week, you’ll hear about the anthology I’m proud to be part of, as well as more announcements about book signings.

As always, stay tuned!

Friday, October 17, 2014

Where to Find Friend Grief

Don’t you love autumn? As far as I’m concerned, you can’t have too many sweaters. It feels like everything ramps up in intensity once the school year starts. And so it is with me.

Here are some upcoming events where you can find me:

Oct. 23            I’ll be leading a chat on Twitter from 7-8pn (EDT) for @DeathwDignity. Look for the hashtag #dwdchat. If you’re n ot already following me on Twitter, you can find me                                         @Victoria_Noe.

Oct. 25            If you’re near Rockford, Illinois, I’ll be at the InPrint Book Fair, hosted by the fabulous Rockford group, In Print Writers. Over 30 writers will be at the Mendelsson Performing Arts Center, 405 N. Main St., from 11-4. Join us!

Nov. 5             I’ll be live from 10-11am (EST) on the CHANGES Google+ HOA. If you’re not already following me on Google+, you can find me at Victoria Noe

I’ll be sharing more next week, including:

                        Upcoming guest blogs

                        Readings and book signings

                        Links to new places where you can find the Friend Grief books

Lots of excitement coming soon, so stay tuned!

And most importantly, thanks for following me here and on social media, for your wonderful feedback on my books, and spreading the word. 

I couldn’t do it without you!

Friday, October 3, 2014

An Awkward Response to a Coworker's Death

I blogged about the famous “Chuckles Bites The Dust” episode on The Mary Tyler Moore Show in 2011. I looked at it in terms of a person’s reaction to a friend’s death, which can sometimes appear inappropriate (like laughing at a funeral).

But I decided to return to it as I work on the next book in my series, Friend Grief in the Workplace: More Than an Empty Cubicle.

Chuckles, after all, was a clown – or rather, playing a clown was his job. He was – to put it mildly – not taken seriously by his coworkers. So it was not surprising that on hearing of his death, they immediately began to joke about him.

Mary was horrified that they made fun of a man who’d just died. But when she got to the funeral, she found herself laughing uncontrollably. This time, it was her coworkers who were horrified.

In the pilot of LA Law, upon seeing the body of one of the firm’s partners who died unexpectedly, Arnie Becker announced, “I’ve got dibs on his office.”

Yes, they’re both TV shows, not real life. But they point out the awkward, uncomfortable situations we can find ourselves in when a coworker dies. We have a lot of questions:

            What’s the proper way to grieve in the office?

            Will I get (paid) time off to go to the funeral?

            Am I going to get stuck doing their work?

They’re not the questions that normally occupy our minds when a friend dies. But they’re the questions that complicate the experience of grieving a friend in the workplace.

Every situation is different, as you’ll see in the book. But in every one, people struggled to figure out how to grieve their friend while still being expected to do their job.

I have no easy answers, only suggestions. One of which is to watch the funeral scene I mentioned above. I know Chuckles would’ve loved it.

Friday, September 26, 2014

Avoiding Grief at Work

He looked great in a tux, too
I’ve been working hard lately on the next book in my series, Friend Grief in the Workplace: More Than an Empty Cubicle. But I struggled to find some validation about the importance of friendships at work.

There’s plenty of anecdotal evidence: stories you’ll read in the book. What I wanted was something more objective. Maybe I needed to conduct my own survey, a daunting prospect I was not prepared to seriously consider. So I ignored the issue for a couple days. As luck would have it, just such a survey presented itself yesterday morning.

You’ll learn more about the survey results in the book, but one of the obvious truths in it was the evidence that we are happier when we’re friends with our co-workers. Whether you love your job or hate it, sharing the experience with others makes our lives a little less stressful. Celebrating promotions, commiserating over a nasty boss, working on a project together: all are enhanced by friendship.

When I worked in the AIDS community of Chicago in the late 80s/early 90s, I did my best to not make friends with co-workers. It’s not that they weren’t nice people (though some weren’t). I knew their HIV status, and back then, being HIV+ was essentially a death sentence. I was never afraid of them or dismissive of them (though I did worry about my assistant’s ability to complete some of the more physical tasks of his job). But I was afraid of getting close, of making friends with someone I spent at least 10 hours a day with, someone I would certainly outlive.

I’m embarrassed to say I’m grateful that Steve and I were no longer working together when he died. To this day, he remains one of the sweetest, kindest, most thoughtful men I’ve ever known. And while I was glad to visit him, enabling his partner to take a brief break from caregiving, I knew I would not have wanted to watch his decline every day at work.

Despite my best intentions, I did wind up making friends with some of the people I worked with then, though most of them were volunteers who  were not around all day, every day. I’m still friends with some of them. We rarely talk about that time, because if we do, we inevitably find ourselves sharing a story about Steve or Ernest or someone else who’s been dead now for decades.

Am I sorry I didn’t make more friends at work? I’m surprised to admit I am. There were people I knew in the community – not actually in the office – who I only knew a little. We weren’t friends by any definition. But I regret now that I didn’t take the time, didn’t put aside my own fear of losing them. There’s no question that my grief would’ve been greater when they died. But my work life would’ve been a hell of a lot richer.

Thursday, September 18, 2014

Veterans in the War...Against AIDS

Last night I attended an emotional event at Gay Men’s Health Crisis, in commemoration of National HIV and Aging Day (September 18). “We Aren’t Dead Yet! What Do We Do Now?” was billed as a community discussion, with an impressive panel of experts: Dr. Judith Rabkin, Columbia University Dept. of Psychiatry and Dr. Perry Halkitis, professor at NYU and author of The AIDS Generation: Stories of Survival and Resilience spoke along with two long-time HIV+ survivors, Jim Albaugh and Kevin Oree, and my friend Jim Eigo, long-time HIV- survivor and fellow ACT UP NY activist.

The event was held in order to get feedback on the kinds of support and services needed by this often-forgotten, often-stigmatized group of people in my age group.

(A couple of asides: First, I like the use of long-time versus long-term. Second, although some may disagree, I do not consider myself a long-time survivor. Like Jim Eigo, I’m HIV-, and though I was involved in the community in the 80s/early 90s, I still see myself as an outsider. I consider myself an ally, nothing more, nothing less.)

The needs were many and varied: from the long-term effects of powerful anti-retroviral drugs, to the stigma felt by gay and straight long-time survivors, to the generational disconnect felt on both sides. Those who did not expect to live to see their 25th birthdays are now facing common aging issues complicated by their HIV status.

But the most emotional moments, at least for me, came from those who strongly identified the most serious issues facing older AIDS survivors as loneliness and isolation. There is an overwhelming need for grief support groups for those who only now – 30+ years into the epidemic – are finally beginning to confront the losses of dozens and even hundreds of their friends.

They delayed their grief because they had to: they had to take care of themselves and their friends, they had to fight for basic rights of housing and health care, they had to fight a war – no time to enjoy the luxury of grieving dozens of friends.

In the title of this post, I used the word “veterans”. I did not use it lightly. It was deliberate.

There are striking similarities between those who have been affected by AIDS and those who have served our country in the military. Both groups suffer from survivor guilt, risk of suicide, complicated health issues and stigma. Both groups have kept their experiences to themselves, only willing to talk about the war many years later. Both share strong support communities even while battling crippling loneliness.

Imagine if the war in Vietnam or Iraq or Afghanistan had dragged on for 30 years, with no end in sight. That’s what it’s like to be a veteran of the war against AIDS. Sometimes it feels like you’re winning, sometimes you feel like you’re losing. Sometimes you’re on the front lines, sometimes you’re sent back for a brief furlough before redeploying. Maybe you mustered out. But the war goes on.

I never envisioned a day when we would need to address the aging issues of men and women who are HIV+. And it’s not just long-time survivors: in this article from the CDC, we Baby Boomers (of whatever sexual orientation) are becoming infected even now. Safe sex is not a topic of discussion at most retirement communities.

And that’s why I challenge the AIDS community – in cities, suburbs and rural areas – to hold listening sessions like the one I attended last night, to determine the services needed by those aging with HIV. And to provide grief support – individual therapy, groups, and online resources – to help them process the grief for their friends that is only now rising up, and give them some measure of peace.

Friday, September 12, 2014

Friends Shut Out on 9/11

Across from Zuccotti Park
Yesterday was the 13th anniversary of the 9/11 attacks. I've attended the observances in New York twice: the 9th and 10th anniversaries. This year, I attended again. And my, how things have changed.

On the two previous occasions I was here on 9/11, there were accommodations for the general public (i.e., anyone not a family member): loudspeakers on Broadway and around the site so the crowds could hear the prayers and names read. On the 10th anniversary, Jumbotrons were set up so we could watch, as well. This year...not so much.

As is my habit, I got down the lower Manhattan early, so I could scope out what was going on. I had to keep reminding myself that I couldn't compare it to 2011 because the 10th anniversary (which included the opening of the Memorial) was a very big deal. Still, as I walked around the entire perimeter of Ground Zero, I found myself increasingly irritated.

There was nothing.

As usual, the immediate area of the Memorial and Museum was blocked off to the general public. There were no loudspeakers, no crowd-control barriers. Zuccotti Park was nearly empty. People poured out of the PATH station and hurried to their jobs. Others wandered around, trying to catch a glimpse through the construction fences.

I walked over to Broadway and then City Hall Park, expecting to see groups there, maybe even the Westboro Baptist Church.

There was nothing.

By the time I made my way over to West St., I was really irritated. A reporter heard me express my frustration to a 9/11 Memorial employee and asked me to explain why I was there.

I told her I was there to pay my respects - the same reason everyone comes there. But unlike those previous years, I couldn't even hear the names read. I would've been better off if I'd stayed home and watched it on TV.

I had to content myself with attending the ceremony at the Queen Elizabeth II September 11 Memorial Gardens, near Wall Street. The Consuls General of the UK, New Zealand, Canada, Jamaica and India made brief, eloquent remarks. It's respectful, quiet and welcoming to all.

This was the first year the city did not oversee the observances at the Memorial. Maybe that's why it was so very different. I don't want to believe it was a deliberate decision - shutting out the public.

But for the people who came down there Thursday morning - friends and strangers alike - it added to the sadness in two ways:

First, that we were completely shut out, unable to even hear the names read.

And second, that maybe, just maybe, the world is forgetting about our friends.

Thursday, September 11, 2014

"We Don't Grieve Well Alone"

Former NY Giant George Martin and
me at the Information Forum
Yesterday I spent the day at the Voices of September 11 Information Forum at the Marriott Hotel across from the 9/11 Memorial and Museum.

It's an intense day of panel discussions for families, first responders, community members and medical professionals on a wide variety of topics: the treatment of complicated grief, cancer treatment information, updates on the Zadroga fund reauthorization.

As people considered buying my book - and thanks to all of them - every one volunteered information: "I'm a survivor". "My husband lost a lot of friends." "My buddy only got down from 83 to 43 because he was helping people get out." Once again, the willingness of people to tell their stories touched me.

Time doesn't heal all wounds, but time does have a way of giving us permission to remember and honor those we lost.

As Dr. Katherine Shear of Columbia University said in her talk on complicated grief, "We don't grieve well alone."

Community: family, friends, coworkers, therapists, spiritual advisors - help us grieve. And the 9/11 community is a perfect example of a previously unrelated group of people thrown together under horrific circumstances. A community that not only helps each other, but which has expanded their reach to help those in other communities experiencing traumatic events.

I think that's important. Remembering and honoring the past if important, but sharing our experiences can help others in ways we'll never know.

One woman who bought my book said, "I've been thinking about writing my story." "You have to," I told her. "Because you're the only one who can."

It will certainly be therapeutic for her. But it could make the difference for someone else out there, too.

"We don't grieve well alone."

That's the truth.

Tomorrow and Friday, I'll share my observations of being in New York for the 9/11 observances. It's very different 13 years later. 

Tuesday, August 26, 2014

How Celebrities Grieve Their Friends

Yes, I know I wasn't going to write about celebrities. But doesn’t it seem like a lot of them have died in the past month or so? James Garner, Sir Richard Attenborough, Lauren Bacall, Robin Williams, Elaine Stritch: all left grieving families and friends, just like non-celebrities – with one glaring difference.

Celebrities leave friends behind who are anonymous and others who are also celebrities. And while those live their lives in the glare of the media, that doesn’t mean that they’re capable of grieving gracefully in public. You may be surprised or even critical of them.

Remember Paul McCartney? He was roundly criticized for his “It’s a drag” comment the day after John Lennon was murdered.

People who hadn’t worked with Robin Williams in decades appeared on talk shows within hours to reminisce about days gone by. Here in Chicago, the local news stations tracked down his elementary school classmates. That’s not unusual. Watch the reports next time a celebrity dies, and see who the first people are to show up on camera.

Often, a celebrity will not appear in public after a friend’s death, instead issuing a very carefully worded press release or tweet.

Sometimes - but rarely – a celebrity speaks eloquently soon after a friend’s death. Russell Brand’s tribute to Amy Winehouse comes to mind, the pain of his loss beautifully exposed for all to see.

Why rarely? Because, as we sometimes forget, celebrities are people, too. They experience the same emotions, same life events. The glaring difference is that they grieve in public, not always by choice.

It seems that those closest to the deceased are often the last to speak in public. They prefer to grieve in private, which is everyone’s right. And I’m usually relieved that that is the case. Too often celebrities – and non-celebrities alike – try to make a tragedy about them. They see a chance to get some attention, at the expense of their friend’s memory. I don’t know about you, but that’s not my kind of friend.

So I’ll leave you with another one of those rare, poignant eulogies. It’s Billy Crystal’s remembrance at the Emmys. It’s a simple and loving tribute to a friend, devoid of the narcissism displayed by others.

What a concept.